About Arya's Legacy
At only 8 months old, cancer picked a fight with Arya. We found out on July 4th, 2016 that she had a rare form of child-cancer called Neuroblastoma. For 9 months Arya took this illness head on and you could tell that she wasn't afraid and was ready to fight. A lot happened in those 9 months and at one point Arya did beat cancer winning the first fight hands down. After 8 rounds of chemotherapy, various surgeries, a bone marrow stem cell transplant, and radiation she was cleared from any cancer cells and we were moving forward to the road to recovery.
On March 6th, 2017 we found out that cancer had come back and wanted another go at Arya. Even though she was still recovering from the first fight she continued to push forward. She was brave, strong, and fearless in her fight and began to inspire others. She didn't back down at any time and would continue to fight to the very end. On April 1, 2017 the fight was over.
Arya fought every day from the first day to her last and in that time kept everyone's spirits positive and hopeful. We don't consider her to have lost the fight to cancer, as long as you fight, you cannot lose. Even if you don't win, you learn. Arya was able to teach and inspire so many people and continues to do so every day. She taught us about what it means to be brave and strong - a real hero. Heroes are the ones who don't give up and they keep fighting even when things are at their worst. Arya is our hero and will always be remembered that way.
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Neuroblastoma (NB) is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands, but can also develop in the neck, chest, abdomen, or spine. Symptoms may include bone pain, a lump in the abdomen, neck, or chest, or a painless bluish lump under the skin.
Neuroblastoma is by far the most common cancer in infants (less than 1 year old). It accounts for about 6% of all cancers in children. The average age of children when they are diagnosed is about 1 to 2 years. In rare cases, neuroblastoma is detected by ultrasound even before birth. Nearly 90% of cases are diagnosed by age 5. Neuroblastoma is very rare in people over the age of 10 years.
In about 2 of 3 cases, the disease has already spread to the lymph nodes or to other parts of the body when it is diagnosed. About half of the cases are diagnosed as high risk. Up to 60% of those patients will likely relapse. Relapsed neuroblastoma has a 5% survival rate!"
So please help us fund the cure for this disease!