Eleni Zoe Pournaras was full of love and life and she saw beauty in even the simplest things!
She was always eager to help everyone, and especially loved helping children with disabilities.
In Nov 2016, at the age of 7, Eleni was diagnosed by Sick Kids Hospital with a rare condition called HHT (Hereditary Hemmorhagic Telangiectasia) which for her, affected her lungs.
Eleni used oxygen therapy and also had a purple wheelchair named “Zippy” which she absolutely loved!
On October 2020, Eleni passed on Thanksgiving evening. Our family will never be the same, but we will always carry her with us in everything that we do!
Our family was introduced to the Sick Kids PACT Team (Pediatric Advanced Care Team) in Oct 2019, and they provided Eleni with Music Therapy, Art Therapy, Massage Therapy, Psycho Social counselling, and now even Grief Counselling for the family. They also provided us with the most compassionate doctors and nurses that would always be there for us through our journey!
Dionysis, Demetra & Dino are super grateful for the love and support provided by the phenomenal staff of the PACT Team and we are now fundraising to help other children and their families create precious memories during their most difficult times.
We would like to thank you from the bottom of our hearts for your generosity in helping Sick Kids.
The Nameless Minority is a Podcast that explores the stories and experiences of those who have suffered the ultimate loss. The loss of a child. Cultures all over the world are able to use words to describe those who have lost parents or spouses, but no word exist in the English language.
To listen to Demetra's story, please click here.
Listen's to the podcast here.
<div><span style="font-size: 17px;">Grief is seldom discussed openly in our culture, and the death of a child makes people feel even more uncomfortable. This blog and podcast, ‘Losing a Child: Always Andy’s Mom’, the topic is approached openly and honestly, speaking to people who have lost loved ones and experts who help care for them.</span><br/></div><p><br/>Listen to Demetra's story on the podcast <a href="https://andysmom.com/2021/06/17/episode-92-elenis-mom/" target="">here</a>.</p>