Steps 4 SickKids is a group of 6 friends looking to make a difference and support transplant research at The Hospital for Sick Children.
What: Virtual Run/Walk/Bike (25Km)
When: July 4th - 10th, 2021
Where: In your own neighbourhood!
How: To register please click HERE. Participants who chose to register for this virtual event will be encouraged to create their own fundraising page and get friends and family to sponsor them in this run/walk/bike. You will even be able to track your km on your fundraising page!
We will be sending challenges to participants weekly to complete. These challenges will encourage a healthy lifestyle and prepare you for the run/walk/bike. Please follow us on our Instagram page @steps4sickkids
Anybody can participate in their own way (walk, run, bike) and go at their own pace (following the Government of Ontario’s guidelines). Remember to be safe, and keep your distance. Your health is most important.
We are hosting this event as a part of Ashley’s Angels, a fundraising initiative that has raised over $1,000,000 to help improve the lives of children with liver and other solid organ transplants.
Our goal is to raise $10,000 in support of Liver Transplant priorities, such as a research study on children who are no longer on immunosuppression medications. This study is being conducted by Dr. Vicky Ng of SickKids.
We hope you can join us for this virtual run/walk/bike!
One of our group members, Ashley, had a liver transplant at SickKids. In January 2009, a previously very healthy 2-year-old became yellow (jaundiced) and she was diagnosed shortly after with a condition called Paediatric Acute Liver Failure (PALF), a very serious condition in which her liver function was deteriorating rapidly and a liver transplant was needed to be performed immediately to save her life. Ashley was prioritized on the National Transplant waiting list, however her urgent medical situation required action quickly so they considered the living liver donor program. Ashley’s Aunt Cheryl was a perfect match. Cheryl donated a portion of her liver that allowed Ashley to receive this life saving transplant.
Ashley is now doing very well and was placed in a trial that allows her to come off all of her immune suppressants (medications). By supporting this event, you are helping to support Liver Transplant priorities, at SickKids, such as a research study that seeks to learn from children, like Ashley, who are no longer on life-long immunosuppression medications.
Current standard of care following liver transplantation includes life-long maintenance anti-rejection medicine, which is individually tailored with the goal of keeping the transplanted organ healthy while avoiding complications caused by the medicines themselves. There are also risks of “too little” immunosuppression, and so best outcomes mandate balancing the needs of the patient and the transplanted organ. This study seeks to learn from children who have achieved the goal of transplant medicine: a healthy liver without anti-rejection medicine. Many of these children are concurrently followed in the Society of Pediatric Liver Transplantation (SPLIT) registry, which houses the largest longitudinal database on children transplanted in Canada and the United States. This study provides the opportunity for us to characterize the clinical outcomes and health status of children off and on immunosuppression enrolled in a multi-center longitudinal database, and include assessment of the risk vs. benefit of being able to stop anti-rejection medicines while maintaining the health of both the patient and of the transplanted live